Quality of Life

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Word document

1. References
2. Bibliography
3. Additional Resources

References

1. Berardo, D. H. (1992). Quality of life across age and family stage. Journal of Palliative Care, 8(2), 52-55.
2. Cohen, S. R., & Mount, B. M. (1992). Quality of life in terminal illness: defining and measuring subjective well-being in the dying. Journal of Palliative Care, 8(3), 40-45.
3. Lamers, W. M. J. (1990). Hospice: enhancing the quality of life. Oncology (Huntingt), 4(5), 121-126.
4. Calman, K. C. (1984). Quality of life in cancer patients--an hypothesis. Journal of Medical Ethics. 1984, 10(3), 124-127.
5. American Society of Clinical Oncology. (1998). Cancer care during the last phase of life. Journal of Clinical Oncology, 16(5), 1986-1996.
6. Payne, S. A. (1992). A study of quality of life in cancer patients receiving palliative chemotherapy. Social Science Medicine, 35(12), 1505-1509.
7. Pickett, M., & Yancey, D. (1996). Symptoms of the dying. In R. McCorcke &M. Grant &M. Frank-Stromberg &S. B. Baird (Eds.), Cancer Nursing: A comprehensive textbook (2 ed., pp. 1157-1182). Philadelphia: W.B. Saunders.
8. Ferrell, B. R., Grant, M., & Virani, R. (1999). Strengthening nursing education to improve end-of-life care. Nursing Outlook, 47(6), 252-256.
9. Kemp, C. (1994). Spiritual Care in terminal illness: practical applications for nurses. American Journal of Hospice and Palliative Care, 11(5), 31-36.
10. Byock, I. R., & Merriman, M. P. (1998). Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index. Palliative Medicine, 12(4), 231-244.
11. Ferrell, B. R., Grant, M., Virani, R., & Marugg, C. (1999). Strengthening Nursing Education to Improve Pain Management at End-of-Life Care.: City of Hope: May Day Pain Resource Center.

Bibliography

1. Baker, R., Wu, A. W., Teno, J. M., Kreling, B., Damiano, A. M., Rubin, H. R., Roach, M. J., Wenger, N. S., Phillips, R. S., Desbiens, N. A., Connors, A. F., Knaus, W., & Lynn, J. (2000). Family satisfaction with end-of-life care in seriously ill hospitalized adults. Journal of the American Geriatric Society, 48(5 Suppl), S61-69.
2. Bestagini, P., Palombi, L., Scarcella, P., Rebulla, P., Lo Faro, F., & Marazzi, M. C. (1998). [The care and health needs and quality of life in a sample of 260 cancer patients in the terminal phase]. Ann Ig, 10(5-6), 373-385.
3. Bowman, K. W., Martin, D. K., & Singer, P. A. (2000). Quality end-of-life care. Journal of Evaluation Clinical Practice, 6(1), 51-61.
4. Bretscher, M., Rummans, T., Sloan, J., Kaur, J., Bartlett, A., Borkenhagen, L., & Loprinzi, C. (1999). Quality of life in hospice patients. A pilot study. Psychosomatics, 40(4), 309-313.
5. Byock, I. (1997). Dying Well: Peace and Possibilities at the End of Life. New York, NY: Putnam/Riverhead Books.
6. Campbell, M. L. (1999). What can nurses do to improve care at the end of life? Michigan Nurse, 72(4), 25.
7. Cohen, S. R., Mount, B. M., Strobel, M. G., & Bui, F. (1995). The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliative Medicine, 9(3), 207-219.
8. Committee on Bioethics and Committee on Hospital Care. American Academy of Pediatrics. (2000). Palliative care for children. Pediatrics, 106(2 Pt 1), 351-357.
9. Donaldson, M. S. (1998). The importance of measuring quality of care at the end of life. Hospice Journal, 13(1-2), 117-138.
10. Engle, V. F., Fox-Hill, E., & Graney, M. J. (1998). The experience of living-dying in a nursing home: self-reports of black and white older adults. Journal of the American Geriatric Society, 46(9), 1091-1096.
11. Fowlie, M., Berkely, J., & Dingwall-Fordyce, L. (1989). Quality of life in advanced cancer: the benefits of asking the patient. Palliative Medicine, 3, 55-59.
12. Jastremski, C. A. (1998). Caring for the families of those who die in the critical care unit. Critical Care Medicine, 26(7), 1150-1151.
13. Larson, D. G., & Tobin, D. R. (2000). End-of-life conversations: evolving practice and theory. Journal of the American Medical Association, 284(12), 1573-1578.
14. Lynn, J. (1997). Measuring quality of care at the end of life: a statement of principles Journal of the American Geriatric Society, 45(4), 526-527.
15. Malacrida, R., Bettelini, C. M., Degrate, A., Martinez, M., Badia, F., Piazza, J., Vizzardi, N., Wullschleger, R., & Rapin, C. H. (1998). Reasons for dissatisfaction: a survey of relatives of intensive care patients who died. Critical Care Medicine, 26(7), 1187-1193.
16. McCorkle, R., Hughes, L., Robinson, L., Levine, B., & Nuamah, I. (1998). Nursing interventions for newly diagnosed older cancer patients facing terminal illness. Journal of Palliative Care, 14(3), 39-45.
17. Moody, L. E. (1999). Living longer, dying longer: nursing's opportunity to make a difference. Nursing Outlook, 47(1), 41-42.
18. Osoba, D. (2000). Health-related quality-of-life assessment in clinical trials of supportive care in oncology. Support Care Cancer, 8(2), 84-88.
19. Quill, T. E. (1996). A Midwife Through the Dying Process ( Vol. 1). Baltimore, MD: Johns Hopkins University Press.
20. Rankin, M. A., Donahue, M. P., Davis, K., Katseres, J. K., Wedig, J. A., Johnson, M., & Maas, M. (1998). Dignified dying as a nursing outcome. Outcomes Manag Nurs Pract, 2(3), 105-110.
21. Rosenfeld, K., & Wenger, N. S. (2000). Measuring quality in end-of-life care. Clin Geriatr Med, 16(2), 387-400.
22. Seligman, P. A., Dignon, C., Ross, D. D., Steen, P. D., Abrahm, J. L., Boston, P. H., Ferris, F., Foley, J., Nelson-Marten, P., O'Mara, A. M., von Gunten, C. F., & Weissman, D. E. (1999). Development of a teaching module for quality-of-life assessment of terminal patients. The AACE Multi-Institutional Palliative Cancer Education Section. American Association for Cancer Education. Journal of Cancer Education, 14(3), 129-131.
23. Shuster, J. L., Breitbart, W., & Chochinov, H. M. (1999). Psychiatric aspects of excellent end-of-life care. Ad Hoc Committee on End-of-Life Care. The Academy of Psychosomatic Medicine. Psychosomatics, 40(1), 1-4.
24. Singer, P. A., Martin, D. K., & Kelner, M. (1999). Quality end-of-life care: patients' perspectives. Journal of the American Medical Association, 281(2), 163-168.
25. Sprangers, M. A., & Aaronson, N. K. (1992). The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. Journal of Clinical Epidemiology, 45(7), 743-760.
26. Steel, K., Vitale, C., & Whang, P. (2000). Annotated bibliography of palliative care and end of life care. Journal of the American Geriatric Society, 48(3), 325-332.
27. Steinhauser, K. E., Clipp, E. C., McNeilly, M., Christakis, N. A., McIntyre, L. M., & Tulsky, J. A. (2000). In search of a good death: observations of patients, families, and providers. Annals of Internal Medicine, 132(10), 825-832.
28. Stewart, A. L., Teno, J., Patrick, D. L., & Lynn, J. (1999). The concept of quality of life of dying persons in the context of health care. Journal of Pain & Symptom Management, 17(2), 93-108.
29. Strang, P. (2000). [Quality of life is the most important goal of nutritional support of the dying]. Lakartidningen, 97(10), 1141-1144.
30. Teno, J. M. (1999). Putting patient and family voice back into measuring quality of care for the dying. Hospice Journal, 14(3-4), 167-176.
31. Teno, J. M., Fisher, E., Hamel, M. B., Wu, A. W., Murphy, D. J., Wenger, N. S., Lynn, J., & Harrell, F. E. (2000). Decision-making and outcomes of prolonged ICU stays in seriously ill patients. Journal of the American Geriatric Society, 48(5 Suppl), S70-74.
32. Volpintesta, E. J. (1998). Quality-of-life and end-of-life decisions. Conn Med, 62(7), 441.

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